This past week #CPChatNow was out of this world on Earth Day! Members discussed Earth Day, trying new things while staying at home, and their thoughts around reopening. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
April 22nd was the 50th anniversary of Earth Day. Jorge asked if folks were enjoying Earth Day.
Next, members discussed trying new things while staying at home during the COVID pandemic. I discussed cooking more while at home and Hailey discussed trying a latch hook kit:
Jorge asked about a common topic that is impacted by the COVID pandemic, colleges and universities.
Finally, Zach asked where different member’s home states are in the COVID pandemic reopening.
This brings us to our Extend-The-Conversation Question: What new things have you been trying while staying at home during the COVID pandemic?
Please share your answers in the comments and join us each Wednesday at 8 Eastern on #CPChatNow.
During our current social isolating times, the live weekly cerebral palsy Twitter chat #CPChatNow provides a way for individuals to come together and safely enjoy social interaction. The chat Wednesday, April 15th, 2020 proved no different. Here to tell you more, I am chat co-host Zachary Fenell. Play the highlight reel (also known as your weekly recap)!
Early discussion Wednesday, April 15th turned to how community members continue to cope with staying home while the Coronavirus pandemic persists.
Both long-time regular Blemi and my co-host Devin Axtman noted staying home so much has been wearing on them. Meanwhile Veronica explained the stay at home order did not entail such a massive adjustment for her. She has been a stay-at-home mom for over 20 years. Additionally, she doesn’t drive. She mentioned if anything, she has less isolation now.
Going back a point, the non driver issue Veronica brought up drove the dialogue forward. Pun entirely intended.
Responding to Veronica, I identified the worst part about not driving in this situation is places with an open drive-thru remain closed to us non drivers. A sentiment Devin further echoed. However, Veronica did offer us a potential solution in suggesting Ubereats, Grub Hub, and Postmates. All three companies she called “great restaurant delivery services.”
Keeping to the delivery theme, discussion directed toward getting your groceries delivered.
In answering my question about making adjustments to home life due to the stay home orders Devin mentioned getting groceries delivered. This piqued Veronica’s attention, who wanted to know how grocery delivery was working now. Devin advised needing to take a strategic approach, indicating delivery time takes a couple of days.
Elsewhere, I named a couple home life adjustments I am making to cope with staying home.
One particular adjustment for me involves using the afternoons as exercise time. I find exercising in the afternoon gives me a healthier midday energy boost compared to grabbing another coffee. How about you? Answer for the week’s extend-the-conversation question, “How do you give yourself a midday energy boost?”
Leave your reply in the “Comments” section below. Then remember to join us on Twitter each and every Wednesday starting at 8pm ET.
This past week in #CPChatNow was intriguing as always. Members discussed strategies for dealing with the COVID stay at home situation, special education during the pandemic, and finding connections via the CP community and blogging. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
#CPChatNow member Tonia has been sharing concerns related to paying for her laundry. She shared an awesome story of a friend helping her out. This shows the power of community during the times we are in.
Next, Zach and I talked about an issue that has been in the news a lot lately, virtual learning and parents. Concerns are even more amplified when you are helping your disabled child with their special education.
Next, talk turned to forming connections with the CP community. Zach asked about the first people with CP we connected with.
Next, talk turned to connections created with a common activity, blogging.
This brings us to our Extend-The-Conversation Question: Do you feel like you need to teach others about having CP? Please share your answers in the comments!
Thanks for reading and please join us each Wednesday at 8 Eastern on #CPChatNow!
Throughout the night Wednesday, April 1st, 2020 participants in the live cerebral palsy Twitter chat #CPChatNow discussed various aspects related to the ongoing Coronavirus pandemic. Here with the details, I am chat co-host Zachary Fenell. Sit back and enjoy your weekly recap.
As I mentioned, this marked the third week practicing social distancing. I asked how everyone was coping. My co-host Devin Axtman noted his hamstrings getting tighter. Long-time regular Blemi replied she is getting weirder by the day.
Meanwhile Tonia described things for her as “pretty much business as usual.” She did express gratitude that her sister, who also has CP, received paid medical leave from her cashier job. Not everyone proves so fortunate.
Essential member to our community and an essential employee to his community, Jorge Oteiza remains working. Although closed to the public, interaction with co-workers still leaves Jorge at higher risk to contract Coronavirus compared to those who can work from home.
Regarding staying home, the prior week’s extend-the-conversation question asking “How is CP impacting staying at home?” kept the dialogue moving.
Props to Devin who first proposed the question in his March 25th, 2020 #CPChatNow recap. Tonia’s reply offered a great perspective. She stated staying home is good for her CP, noting the alternative would involve dealing with dangerous germs and/or exhausting herself.
Additionally, Devin provided new perspective. He mentioned staying home isn’t as big of a deal for him since he is used to staying home after surgeries. Essentially, you could say Devin’s cerebral palsy served as a positive in that way. To keep the positive vibes flowing, share some good news. Consider that this week’s extend-the-conversation question.
I think everyone could use the good news. So go ahead and share by leaving a comment below. Then remember to join us each and every Wednesday on Twitter, starting at 8pm ET.
This past week in #CPChatNow was interesting as always. Members discussed CP awareness, working from home, and famous people with CP. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
March 25th by coincidence happened to be Cerebral Palsy Awareness Day. Members discussed whether wishing people a happy CP Awareness Day was appropriate.
Hannah also popped in to wish everyone a happy CP Awareness Day:
Talked turned to the effectiveness of a common strategy for raising CP awareness, wearing green.
Zach and I discussed positives and negatives of wearing green:
Finally, talk turned to a common topic during the COVID outbreak, working from home.
However, Veronica tweeted about how the recent changes with the pandemic have impacted the availability of her work of scoring standardized tests:
This brings us to our Extend-The-Conversation question: How is CP impacting staying at home?
Please share your answers in the comments, join us at #CPChatNow at 8 Eastern each Wednesday on Twitter and most importantly, stay home and stay safe!
While concern over the Coronavirus continues growing, the live cerebral palsy Twitter chat #CPChatNow offered participants familiarity and comfort Wednesday, March 18th, 2020. To tell you more, I am chat co-host Zachary Fenell. Get ready for your weekly recap.
In a time involving many changes to how we interact with each other, #CPChatNow required no such changes. You could say we help to make social distancing easier.
Early conversation in the night revolved around how participants are holding up during these uncertain times. Something my co-host Devin Axtman asked directly.
Everyone appears impacted by the pandemic, although to different levels. Devin exhibited positive thinking, noting he has a job and hasn’t been affected as much as others so far. Both chat regular Chris and I demonstrated appreciation for any thread of normalcy.
Additionally, a blast from #CPChatNow past Jorge Oteiza popped in to share as essential personnel, he must continue working. Plus Jorge reminded us to thank mail carriers, doctors, nurses, and first responders next time we are safely six feet away.
Fittingly, Jorge called the six-feet distancing a “new reality.” Let us know how you are holding up in our new reality. Answer as the week’s extend-the-conversation question, “How are you holding up during the Coronavirus pandemic?” Leave your reply in the “Comments” section.
The Coronavirus pandemic influenced our dialogue a little longer as participant Tonia detailed a predicament Coronavirus has created for her.
Between a shelter-in-place notice and no access to more quarters, Tonia only possesses the means to do laundry one more time. Higher ups at her building declined suspending the quarter requirement because a separate company owns the machines. I recommended Tonia and her neighbors contact the other company and voice their concerns.
After awhile the chat’s focus turned away from the Coronavirus pandemic. Much thanks to last week’s extend-the-conversation question!
Within the March 11th, 2020 recap, Devin posed the question “What piece of advice do you wish your parent would have known about CP or having a disability?” I answered “It is not about what you ‘can’ and ‘cannot’ do, but rather asking how could we do this?”
Devin on the other hand admitted not knowing how to best word his answer in a tweet. However, that his advice would entail the fact he felt his parents were a bit overprotective. This led to further discussion regarding parenting a child with cerebral palsy.
As Devin and I discussed the parent’s perspective, Tonia reminded us not all parents overprotect. Some not knowing how else to interact, push their child to be non-disabled. An impossibility! Tonia noting both extremes cause harm.
Time to keep the dialogue chugging forward. Remember to answer the week’s extend-the-conversation question. “How are you holding up during the Coronavirus pandemic?” Let us know!
Answer in the “Comments” section.
Until next time, remember. Don’t blend in. Blend out!
This past week in #CPChatNow was intriguing as always. Members discussed desires for stylish adaptive equipment, actors and actresses with CP, and advice for parents. This is #CPChatNow co-host, Devin Axtman, taking you along for the ride on this week’s recap.
Zach and Blemi tweeted about their desire for adaptive equipment to be stylish and why attention may not be paid to that:
Next, attention turned to people’s favorite actors and actresses with CP:
Finally, Zach asked what advice people would give to parents of someone with CP. Members offered a variety of advice, but most centered around connecting with community and exposing their children to people with disabilities:
This brings us to our Extend-The-Conversation Question: What piece of advice do you wish your parent would have known about CP or having a disability?
Please share your answers in the comments and join us each Wednesday at 8 Eastern on Twitter.
On Wednesday, March 4th, 2020 the cerebral palsy Twitter chat #CPChatNow enjoyed an energized night. Participants shared exciting news, discussed cerebral palsy awareness, and more! Here to fill you in with the details, I am chat co-host Zachary Fenell. Prepare for your weekly recap!
Additionally, our beloved “Positivity Princess” Linds revealed her own exciting news.
A glee sparkled from Linds’ tweets as she shared she received a transfer at work and will soon return to her home in Ames. Join me in congratulating Linds. Respond to this post and leave her a congratulatory comment.
Elsewhere in the chat participants found inspiration for conversation in Cerebral Palsy Awareness Month.
I asked #CPChatNow what they wish people were more aware of regarding CP. Long-time regular Blemi said she wished more people realized the condition results from brain damage and is not as simple as fixing a limb. My co-host Devin Axtman offered two answers. He wants people to know cerebral palsy does not make you unattractive.
Furthermore Devin noted the condition does not go away at 18 years old. Chat newcomer Tonia also expressed similar sentiments, saying “in spite of it (cerebral palsy) being a ‘childhood disability’ we do grow up.” Tonia added many invisible aspects connected to CP go ignored. Aspects she thoroughly covers in a blog post “Parenting Kids with Disabilities: What You Can’t See (Invisible Aspects of CP).”
Reading through Tonia’s post, I had a question come to mind. So, I asked #CPChatNow.
In her post Tonia mentioned her spasticity being more intense when barefoot. Curious to see if others experienced the same, I asked if you feel your spasticity is more intense when barefoot. Devin said he has less support and balance when barefoot. Blemi agreed her feet are very sensitive and as such she does not like to go barefoot. What about you? Answer for the week’s extend-the-conversation question, “Do you feel your spasticity is more intense when you are barefoot?” Comment below to answer!
After answering, make your plans to join #CPChatNow each and every Wednesday. The fun begins at 8pm ET.
On Wednesday, February 19th, 2020 participants in the weekly cerebral palsy Twitter chat #CPChatNow enjoyed an assorted conversational spread. Keeping to the food analogy, that makes me co-caterer (oppose to co-host) Zachary Fenell. I invite you to come sample the discussion via our weekly recap.
Travis Davis, a returning newcomer to our community, asked a question about self-employment.
In-particular Travis wanted to know if anyone has experience with self-employment. I offered my honest feedback, mentioning I have dabbled in self-employment albeit not quite successfully. As I explained further, not knowing how much to charge for my freelance writing services and lacking the confidence to charge said prices proved my downfall.
Nonetheless downfalls and failure do not need to define us. Through additional back and forth I revealed I still describe myself as an entrepreneur. However, I treat entrepreneurship more like a hobby. This takes pressure off converting sales.
What about you? Answer for the week’s extend-the-conversation question, “What is a lesson you have learned from failure?” Leave your reply in the “Comments” section.
Elsewhere in the chat, getting a new wheelchair came up.
The topic arose when Casey mentioned she should be getting a new wheelchair soon. My co-host Devin Axtman and Casey began discussing different details involved in the process. Details like getting the prescription written and going through the wheelchair evaluation. All information peaking my interest since I never experienced the process myself. Fueled by my curiosity, I asked a question about getting a new wheelchair.
Casey, Devin, and chat regular Seth each replied to my question asking how often they get a new wheelchair. Five years appeared the common time frame for getting a new one. In that time frame you could answer the week’s extend-the-conversation question over and over and over! To refresh you, this week’s question asks “What is a lesson you have learned from failure?”
Comment below to answer!
After answering double check your calendar and ensure you have each Wednesday marked for #CPChatNow. Each week the fun starts at 8pm ET.
This past week in #CPChatNow was insightful as always. Members discussed things they had done to accommodate their CP, canes, and shoes. This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride on this week’s recap.
First, I would like to make a recommendation. Go buy Zachary Fennell’s book, Off Balanced. I bought it and I’m loving it so far:
Next, Zach brought up last week’s Extend-The-Conversation question about accommodating your Cerebral Palsy.
Chris tweeted about being selective about her shoes while I shared I moved to using a wheelchair at school in high school.
Zach and Chris tweeted about their past use of canes and adventures with them.
This brings us to our Extend-The-Conversation Question: Have you worn a special type of shoe due to your CP?
Thanks for reading! Please join us each Wednesday at 8 Eastern on Twitter at #CPChatNow.
#CPChatNow 