#CPChatNow Recap- Writing a Cerebral Palsy Book/Memoir Focus Chat

Writing a cerebral palsy book or memoir remained the subject for #CPChatNow Wednesday, July 26th, 2017. Yours truly, co-host Zachary Fenell, enjoyed the pleasure to lead the focus chat. I prepared seven discussion questions based off my experiences writing and publishing my CP memoir Off Balanced. However I proved not the only author around to chat July 26th.

Author of Someone Like Me: An Unlikely Story of Challenge and Triumph Over Cerebral Palsy John W. Quinn offers to add his insights to #CPChatNow's "Writing a Cerebral Palsy Book/Memoir" focus chat.Yes! Fellow #CPChatNow co-founder and author to the cerebral palsy memoir Someone Like Me: An Unlikely Story of Challenge and Triumph Over Cerebral Palsy John W. Quinn offered to add his insights to the chat! Fitting since his name came up anyways after I asked the first question.

Zachary asks #CPChatNow participants about what CP books stand out to them.Now I prefaced the question, explaining the importance behind knowing similar books already published. That way you can try emulating the attributes which worked for other authors. In her response to the first question regular Shira Sadiky complimented my memoir, calling Off Balanced “relatable.” I noted I felt the same relation reading Someone Like Me. Co-host Devin Axtman also praised John Quinn‘s work.

Devin Axtman shares Someone Like Me sticks out to him.Meanwhile long-time regular Alena Brand named a trait she enjoys in cerebral palsy themed books.

Alena Brand enjoys disability memoirs that maintain positive outlooks.

Opposed to naming specific titles, Alena mentioned enjoying disability memoirs featuring positive vibes. Other books brought up included Geri Jewell’s I’m Walking as Straight as I Can and Bonner Paddock’s One More Step. Perhaps another title stands out to you. Speak up by answering for the week’s extend-the-conversation question “Do any particular cerebral palsy books stand out to you? Why?” Respond in the “Comments” section.

Continuing on, the night’s second question addressed motive behind writing a book.

Zachary Fenell gets #CPChatNow participants to think like a writer and reflect on why you would write a memoir.

Shira raised two potential motivations. Share your experiences others could relate to and/or learn from others. I resonated with the second, commenting I like reading memoirs from those with more severe cerebral palsy. Remarks Alena made also spoke to the learning theme.

Alena aspires to write a memoir in order to have people understand how she lives.Alena plans to write a book to educate others on how she lives. Yet not everyone possessed author aspirations.

Devin doesn't think his life is different enough to write a book.Devin expressed doubt he lives differently enough to warrant writing a book. I pointed out he could target able-bodied readers to show a disability does not make someone so different. Every story contains value. Sometimes you just need to find the right perspective.

The above holds true with regards to the writing process too. Penning a manuscript can seem intimidating. John supplied another way to view the task.

John Quinn didn't think of himself as writing a book but instead he focused simply on telling stories.John recommended concentrating on telling stories opposed to writing a book. He added practical advice to help enter said mindset.

John suggests not worrying about grammar or anything. Rather "Just write. Edit later."A later question transitioned the conversation from the writing process to the publishing and marketing aspect.

Question five transitioned from the writing process to publishing and marketing, asking "How can a blog help transition you to publishing a book?" Jen postulated bloggers could assist spreading word about your book. Truth based off my time marketing Off Balanced! The dialogue proceeded to discuss marketing specifics. Much I learned reading a certain book.

Zachary recommends aspiring authors read Publishing & Marketing Realities for the Emerging Author by Christine Rose.Seriously, most I know about the publishing process I learned reading Publishing and Marketing Realities for the Emerging Author by Christine Rose. For aspiring authors if you take one tidbit away from this recap, make that read Publishing and Marketing Realities for the Emerging Author.

Book lovers, hopefully you too enjoyed reading the “Writing a Cerebral Palsy Memoir/Book” focus chat recap. Perhaps the chat introduced you to a CP book you didn’t know about previously. Or, maybe you can suggest a book not discussed. Remember the extend-the-conversation question.

Answer in the "Comments" section, "Do any particular cerebral palsy books stand out to you? Why?"“Do any particular cerebral palsy books stand out to you? Why?”

Respond by commenting below!

Talk with you later,

-Zachary

#CPChatNow Recap- 7-19-2017

This past week was a lively week in #CPChatNow as always.  Members discussed marathon training, the impacts of road trips on their CP, media portrayals of disability, and the use of CP in their Twitter handle.  This is #CPChatNow Co-Host, Devin Axtman, taking you along for the ride.

#CPChatNow Co-Host, Zachary Fenell, opened the chat with some exciting news, announcing that he is training for a marathon with the help of original #CPChatNow member, John Quinn.

Zach announcing that he is training for a marathon 22 miles per days with John Quinn's help

John Quinn stating that he did the San Diego marahon

Next, talk turned to difficulties members have on roadtrips due to the time spent in the car making their muscles tight.

Members discussing how roadtrips impact their depth perception and muscles

#CPChatNow member, Shira, also talked about the issues she had with the media regularly putting prominence on a person’s disability over other aspects of their story. Members differed on whether it was to grab attention or highlight the increased risk of violence people with CP face.

Members discussing disability use in headlines

Finally, talk turned to the reasons members do or do not use CP in their Twitter handle.  Members discussed how it is part of their life and that they use it to empower others while others did not perceive CP as something that defines them.

Zach and I talking about how I use my CP Twitter handle as a tool to empower others

Kate stating she had it in her handle so others would know when she followed someone. Blake stated he felt inspiration stuck

Now, for some housekeeping announcements. The first is that Co-Host, Zachary Fenell, will be leading a Focus Chat on writing a CP book/memoir on July 26th!

Also, our next Google Hangout will be taking place on July 27th

Now, to our Extend-The-Conversation question.  I am going to play off Shira’s question for this one: What are some of your complaints about disability and the media?  Please share them in the comments.

Tweet you later!

Devin

A street sign behind a clear blue sky with clouds. The sign has arrows saying internet, radio, magazines pointing to the left with television and newspapers pointing to the right. The CPChatNow logo is in white on top of a pink background and the extend the conversation question is also there in white

#CPChatNow Recap- 7-12-2017

Wednesday, July 12th, 2017 saw participants gather for our typical Wednesday night #CPChatNow Twitter chat. Considering context though, you could define “typical” with the word extraordinary. At least that remains my biased opinion as #CPChatNow co-host Zachary Fenell.

The communal atmosphere and ability to learn from one another all while enjoying ourselves makes our Twitter chat standout. Do you want proof the above happens? Keep reading!

Susanne Kate Brasset started getting the dialogue going by asking others about their experiences receiving botox injections. A topic on Susanne’s mind given her next botox treatment loomed.

Zachary answers Susanne's question, sharing he received botox from the ages 12 to 16.I shared I underwent botox treatment between the ages 12 and 16. However, we discontinued because the results did not seem worth the hassle. Co-host Devin Axtman also discussed undergoing botox treatment.

Co-host Devin Axtman remembers undergoing botox treatment in fourth and fifth grade.Devin explained the botox helped him feel a lot looser but to get the injections doctors needed to put him under general anesthesia. While the botox discussion continued, our resident celebrity Maysoon Zayid made time in her busy schedule to stop in and say hello.

Maysoon Zayid takes time out of her hustle to say hello to CPChatNow.A little later on a newcomer joined in, seeking advice regarding a particular issue.

Newcomer Grace asks #CPChatNow about remedying pain caused by temperature changes.In an effort to best answer Graces question I asked follow-up questions. I wound up recommending a product I like to use, ICYHOT.

Rachel Folly cracks a joke after Zachary recommends to Grace a product to help relieve pain.Rachel Folly sought the opportunity to use her “Them’s the rules” line. Comments I explained to Grace represented an inside joke. Not actual rules!

Zachary explains the "them's the rules" comment to be an inside joke.

Through continuing dialogue we learned Grace discovered us thanks to Maysoon’s earlier tweets. Anyways, shall we get serious and re-visit Grace’s question? Answer for the week’s extend-the-conversation question, “How do you handle pain caused by changes in temperatures?” Leave your reply in the “Comments” section.

Other noteworthy points coming out our July 12th, 2017 Twitter chat related to our upcoming monthly events. First co-host Jorge Otezia announced the July 2017 focus chat details.

Co-host Zachary Fenell, author of the cerebral palsy memoir Off Balanced, will lead a discussion on writing a CP related book/memoir on Wednesday, July 26th, 2017.I am very much looking forward to our discussion Wednesday, July 26th. Hopefully the aspiring authors within our group will find the chat beneficial. Additionally, remember the same week, on Thursday, July 27th, 2017 we will hold our monthly Google Hangout video chat. To get added to the invite list contact Devin, Jorge, or myself.

While a big week next week, let us not allow the anticipation to overshadow this week’s chat. The fun begins at 8pm ET! Before then answer the extend-the-conversation question.

This week's extend-the-conversation question asks "How do you handle pain caused by changes in temperatures?"“How do you handle pain caused by changes in temperatures?”

Answer below!

-Zachary

#CPChatNow Recap- 7-5-2017

This past week was a lively week on #CPChatNow as always.  Members discussed finding shoes that fit them, working on a disability pride march, important issues that face the disability community, and invasive questions they have been asked about their CP.  This is #CPChatNow Co-Host, Devin, taking you along for the ride. Enjoy!

This chat started out with some happy news as Hannah noted she found some sandals she can walk in:

Hannah tweets that she found sandals she can walk in and bought both shoes. There is a picture of her foot in a pink sandal. Zach replies that it is the little things in life while Hannah responds she is just happy to find shoes she can walk in

Next, Rachel noted that she is working on translating the Chicago Disability Pride March brochure into Spanish. We love to see positive change at #CPChatNow!

Rachel noting she may be working on translating the Chicago Disability March brochure into Spanish or at least volunteering for the march

Then, talk turned to Gabriella Burman’s question of, “What is the most important issue keeping people with disabilities from living a full and independent life?”  I started out by saying that I felt the most important issue is a society that is not set up for us. Transportation and attitude also came up.

There was also a discussion of whether attitude is the most important factor when it comes to accessibility. I pointed out that if you don’t give someone a chance, do all of the other variables matter?

There was also a discussion of whether attitude is the most important factor when it comes to accessibility. I pointed out that if you don't give someone a chance, do all of the other variables matter?

Finally, talk turned to what is the most invasive question anyone has been asked about their CP.

Zach asks what the most invasive question people have been asked is. Suzanne reports being yelled at an airport for using the accessible stall. I pointed out that I get questions about why I am walking if I use my wheelchair

Hannah “won” the question (although, I don’t know if there are any winners here) by tweeting that she was asked how she used the restroom by herself.

Hannah tweets that she was asking how she uses a public restroom by herself. Zach says that it is better than being patronizing. Hannah tweeted that she just ignored the question

For our Extend-The-Conversation question, I would like to go back to Zach’s tweet about Hannah’s shoes being an example of “the little things” in life.  What are some of the little things you take pleasure in regarding CP?

Be sure to join us every Wednesday at 8 EST on #CPChatNow on Twitter!

Tweet you later!

Devin White text in front of a background of waves crashing onto rocks: What are some of the little things you take pleasure in regarding CP? White #CPChatNow logo below question

#CPChatNow Recap- 06-28-2017

The way other people react to your cerebral palsy proved a popular topic during our June 28th, 2017 #CPChatNow Twitter chat. I am co-host Zachary Fenell. For your reading pleasure I gathered some highlights and compiled them into this recap.

To kick off the night’s dialogue, relative newcomer Christine sought advice.

Christine asks the #CPChatNow community for advice on cleaning low places, like a shower.Our community came through with suggestions to help Christine solve her challenges cleaning in low places. I mentioned I use a stool at work to more comfortably organize bottom shelves at the library. Meanwhile co-host Devin Axtman asked a follow-up question to better understand Christine’s situation.

Devin asks Christine for more details on the challenges she faces cleaning low places.Devin related to Christine’s experiences and recommended grab bars. Emotions soon grabbed hold over the conversation when long-time regular Blemi shared a story from earlier in her day.

Blemi shares a story about a stranger who cried after Blemi told him her CP was a birth defect.Blemi’s story really flabbergasted our community. Devin felt dumbfounded regarding how he might react in said situation.

The story Blemi shares about her interaction with a stranger leaves the CPChatNow community flabbergasted.Reflecting more on the situation, Blemi expressed feeling offended and objectified. Her irritation led to the question why someone thinks you can ask such a personal question in the first place.

Blemi wonders what a person thinks before asking a stranger a personal question like "What's with your leg?"I postulated the other person fails to think prior to asking. Instead the question results courtesy impulsive curiosity. Or, “wondering out loud” as Blemi rephrased.

Perhaps you may relate. Let us know by answering this week’s extend-the-conversation question. “What is the most invasive question a stranger has asked you about your CP?” Reply in the “Comments” section.

Continuing the dialogue discussing others’ reaction to CP co-host Jorge Oteiza (previously Blake Henry), recalled explaining his CP to wondering kids.

Co-host Blake Henry explains his CP to the children he works with by saying all people are different.Jorge tells kids wondering about his CP that everyone is different. In my opinion, a great message to tell kids! Differences often cause self-consciousness. Sometimes to severe degrees where the person does not participate in an activity due to his or her differences.

Personally, I like to think I helped reduce the aforementioned last year with the shirt I designed “Run, Walk, Roll, Limp However You Move, Move!” A point I bring up not to self-promote but rather transition to the news I revealed to #CPChatNow June 28th, 2017.

#CPChatNow participants encourage Zachary after he reveals his intention to complete a full marathon this October.Thank you to everyone who offered me supportive words. Enough rambling about me, though! Remember to answer the week’s extend-the-conversation question.

Answer by commenting "What is the most invasive question a stranger has asked you about your CP?"“What is the most invasive question a stranger has asked you about your CP?” Respond below in the “Comments.”

Tweet you soon.

-Zachary

#CPChatNow Recap- 6-21-2017

This week in #CPChatNow was an eventful week as always.  Members discussed many things such as: meeting their heroes, their personal definition of brave, and what the word spaz means to them.  This is #CPChatNow Co-Host, Devin Axtman, and I will be taking you along on this week’s ride.  Buckle up!

This week started with some exciting news as #CPChatNow regular, Hannah Pike, announced that she has fulfilled a bucket list item by meeting Carrie Underwood:

Hannah Pike meeting Carrie Underwood through a random draw Next, #CPChatNow Co-Host, Blake, also known as Jorge, offered an update on his always busy life:

Blake offering an update on finishing classes, starting a food truck, and working on a campaign

#CPChatNow also is continuing to expand internationally as Carissa Anne joined us from Australia!

Carrie Anne joining us from Australia and asking if anyone is familiar with the NIDS

Talk then turned to Jen describing her dog as a “spaz” and whether people consider that offensive:

Jen asking if describing her dog as a spaz is offensive. Most members agreed that it depends on the context

Next, talk turned to who members would most like to meet. A few members offered some people they would like to meet:

Zach asking who members would like to meet. Dave offered Alton Brown and Charles Eames

Zach and I discussed more people we would like to meet such as a professional baseball player, Walt Disney, or pro wrestling manager, Paul Heyman:

Zach stating he would like to meet an MLB player, I offered Walt Disney, while he offered Paul HeymanFinally, talk shifted to member’s definitions of what it means to be brave. Blemi and Rachel agree with the definition of doing something that scares you because you know you have to:

Zach asking what the word brave means. Blemi and Rachel agrees this is something that people do even though it scares you

Christine and Zach discussed the idea that someone is brave if they take a chance on something:

Zach and Chris agreeing that someone is brave if they take a chance on something

This brings us to our Extend-The-Conversation Question: What does being brave mean to you?  Please include your answers in the comments! An orange cat sitting and looking at its shadow which is a lion. Extend-The-Conversation-Question along with What does being brave mean to you? along with #CPChatNow white logo in the upper right hand corner

Also, don’t forget about our June Google Hangout on Thursday, June 29th at 7 PM!

Tweet you later!

Devin

#CPChatNow Recap- 06-14-2017

Wednesday, June 14th, 2017 participants who joined #CPChatNow experienced a stroll down memory lane. I am Zachary Fenell, a proud #CPChatNow co-founder and current chat co-host. Fittingly I receive the pleasure to recap the June 14th, 2017 chat. This should feel like writing a #CPChatNow history lesson!

Before delving into our history though, you might notice a certain someone missing from the highlights. Last week my co-host Blake Henry and I announced Devin Axtman‘s move to permanent co-host. He, Blake, and I will all work together to serve our community. Anyhow, Devin to celebrate his new promotion possessed special plans June 14th.

Devin shares he will be absent as he prepares to go to Disney World. Now, I am joking around about the reason for Devin’s visit to Disney World. I know he planned the trip months ago. The timing with his #CPChatNow co-host promotion just proved too tempting. I couldn’t resist the “I’m going to Disney!” joke.

Moving along, the previously mentioned stroll down memory lane’s catalyst came when some new faces emerged.

Christina joins #CPChatNow for the first time.Upon learning Christine Ruiz‘s newbie status, Susanne Kate Jones teased some hazing. Christine’s response indicated she will likely fit right in with our humorous bunch.

After #CPChatNow veteran Susanne Kate Jones teased hazing, newbie Christine Ruiz gives a response indicating she should get along with our community. Thankfully Christine caught onto the comedic tone behind Susanne’s remarks. Another newcomer surfaced a little past our second hour.

CerebralPalsySpeaks stumbles into #CPChatNow, fearing to have missed the chat. Quickly within the 50 minutes left CerebralPalsySpeaks grew intrigued by our community. Enter the question, “So, who started this lovely hashtag?”

CerebralPalsySpeaks asks who started #CPChatNow.Based off participants’ responses, I am glad CerebralPalsySpeaks asked. After all, every party involved in the origins deserves credit.

Susanne credits John W. Quinn for starting #CPChatNow.Rachel credits Zachary for starting #CPChatNow but he corrects he co-founded #CPChatNow along with John W. Quinn and Handicap This.Susanne credited Someone Like Me author John W. Quinn as the #CPChatNow originator. Meanwhile Rachel Folly gave said distinction to me. Both remained partially correct. John and I each explained we together with Handicap This founded the hashtag. I offered up the visual evidence, tweeting out the promotional image we used to promote the very first #CPChatNow.

Long-time #CPChatNow participant Hannah Pike recalls seeing the original promotional graphic I shared while we all discussed #CPChatNow's history.Long-time #CPChatNow regular Hannah Pike remembered seeing the image. She admitted letting shyness keep her away initially. That caused me to joke since the #CPChatNow train design shirt we sold last year extends back to a life experience Hannah once shared with us. The joke surprised Susanne who didn’t know #CPChatNow apparel existed.

In 2016 we at #CPChatNow held two shirt sales using Custom Cat. Proceeds went to Handicap This’ non-profit Keep On Keeping On Foundation. Between the two sales we raised $170 for KOKO. If interested in us relaunching the shirt sale, tell us!

Answer for the week's extend-the-conversation question "How did you learn about #CPChatNow?"Also why not contribute to the #CPChatNow history lesson? Answer for the week’s extend-the-conversation question, “How did you learn about #CPChatNow?” Respond by commenting below!

Until next time.

-Zachary

#CPChatNow Recap- 6-7-2017

This week was an eventful week as always in #CPChatNow Land.  Members discussed a wide range of things from getting new leg braces, to doing ballet as kids, to underrepresentation in the Cerebral Palsy community.  This is Devin Axtman taking you along for this week’s ride.

First of all, I am humbled and honored to serve as full time Co-Host/Engineer for #CPChatNow.  Blake and Zach will both be staying on as co-hosts and contributing:

Zach announcing I will serve as a co-host

I started the conversation by discussing how I am in the process of getting new leg braces.  Christine and I bonded over our mutual hatred of the casting saw:

Me discussing getting new leg braces and Christine discussing her hatred of the casting saw

Next, Susanne talked about how she did ballet for 15 years and it helped stretch her calves and ankles. This is a great example of non-traditional methods being therapy for CP:

Susanne talks about how doing ballet for 15 years stretched her calves and ankles.

Talk shifted to public figures with CP and what complications are underrepresented in conversations:

Next, talk turned to issues that people with speech issues, a potential complication of CP, face:

Members shared their issues with difficulties with speech and their history with speech therapy.  On a positive note, Susanne shared that her speech issues landed her an audition:

Now, we’ll end the recap on some good news.  The person who attacked a man with CP at a gas station was arrested this week. However, Rachel pointed out that there is still work to do.

Finally, our next Google Hangout will be on Thursday, June 29th:

This brings us to our Extend-The-Conversation Question: What are some complications from CP that are underrepresented? Please share your answers in the comments. Extend-The-Conversation graphic: What are some complications from CP that are underrepresented?

 

#CPChatNow Recap- Aging with Cerebral Palsy Focus Chat

On Wednesday, May 31st, 2017 #CPChatNow presented a much anticipated focus chat about aging with cerebral palsy. Interim co-host Devin Axtman and I (co-host Zachary Fenell) alternated asking the questions you in our community suggested. Questions which triggered vibrant conversation. Some highlights follow below.

Now any credible chat on aging with cerebral palsy requires individuals willing to discuss their personal experiences. Therefore to start the Q & A we asked participants comfortable doing so to share their ages. Majority in the group fell between mid-20s and mid-30s. Although a few elder-statespeople ranging in age from 40 to 55 chimed in too. Meanwhile the youngest participant remains amidst her final year as a teenager.

Once we established our participants’ credibility, we delved into our more substantial questions. Our second question addressed what to expect aging with cerebral palsy and how to handle said expectations.

The second question of #CPChatNow's Aging with Cerebral Palsy focus chat asks about expectations aging and how to deal with these expectations.Rachel expressed concerns related to every day wear and tear to the body, symptoms possibly worsening, and even new symptoms. In my personal response to the question I mentioned lacking resources for adults with cerebral palsy.

Co-host Zachary Fenell mentions compared to kids, adults with cerebral palsy possess less resources to help deal with CP.Turned out others also related to using older braces. Alena‘s reply particularly revealed an ill-fated perception viewing new orthotics as a “kid thing.” Concentrating more towards items we can control, Maysoon Zayid offered up hope.

Maysoon Zayid explains lifestyle changes she made in order to help lessen her cerebral palsy symptoms. Through lifestyle changes like practicing yoga regularly and avoiding animal products, preservatives, dyes, and caffeine Maysoon explained that her CP symptoms lessened. What about you? Your turn to add to the conversation! Answer for the week’s extend-the-conversation question, “What changes to cerebral palsy with regards to aging should we expect and how do you deal with them?” Leave your response in the “Comments” section.

Maybe similar to Maysoon, you benefited thanks to yoga. Actually, similar to Maysoon and others considering multiple people praised yoga during our “Aging with Cerebral Palsy” focus chat.

Newcomer to #CPChatNow Grace Lapointe also has had positive experience with yoga.John W. Quinn, one of the original #CPChatNow co-hosts, finds yoga helps with balance issues plus back and hip pain.#CPChatNow newcomer Grace Lapointe and a fellow #CPChatNow founding father John W. Quinn alike endorsed practicing yoga. All the praise left another newcomer Christine seeking advice for getting started.

Christine wonders about yoga and expresses concern about toppling over.Christine vocalized hesitation in getting started, nervous about toppling over. Participants rallied to encourage Christine. John and Maysoon both disclosed using assistance when first beginning yoga.

John W. Quinn and Maysoon Zayid talk about their beginnings with yoga.Alongside the yoga chatter, our set questions for the evening continued. Question three asked about others’ experiences and tips to make life easier. That led to Maysoon offering up an observation.

Maysoon Zayid notes an observation that many individuals with cerebral palsy forget aging impacts everyone.Similarly, John advised separating cerebral palsy from emerging health issues.

John W. Quinn advises to separate cerebral palsy from emerging health issues.Next the conversation transitioned to the biggest surprise and frustration to accompany aging.

Dwindling mobility and discomfort sleeping proved re-occuring answers from #CPChatNow participants when discussing the biggest surprise and frustration caused by aging.

A couple re-occurring themes appeared when community members named the biggest surprise and frustration accompanying aging. Those themes including dwindling mobility and discomfort when trying to sleep. Ending the night optimistically, John recognized the potential boost ekoskeleton braces could offer the cerebral palsy community in the future.

John W. Quinn believes ekoskeleton braces could provide the CP community a boost in the future.Hopefully our “Aging with Cerebral Palsy” focus chat recap will give you a boost in dealing with CP in your future. Remember you may keep the conversation going by answering the week’s extend-the-conversation question.

Answer in the "Comments" section- What changes to cerebral palsy with regards to aging should we expect and how do you deal with them? “What changes to cerebral palsy with regards to aging should we expect and how do you deal with them?”

Respond by commenting below. Expect Devin in the next few days with the recap for our June 7th Twitter chat. Until next time!

-Zachary

#CPChatNow Recap- 5-24-2017

This week’s #CPChatNow Twitter chat was a meandering chat that reflected the busy nature of our member’s lives.  There was even a little bit of Español thrown in!  I am #CPChatNow Interim Co-Host, Devin Axtman, and I will be taking you along on this week’s recap.  All aboard!

This week’s chat took on numerous topics, but a well discussed topic was member’s feelings about the impact of therapy in their life.  Rachel shared a funny antidote that doing dishes was therapy for her after Blemi shared she was exhausted from doing dishes:

Rachel states doing the dishes was occupational therapy for her after Blemi suggests she was exhausted from them

#CPChatNow regular, Jessica, also shared why she felt the common belief that Physical Therapy is simply an extension of personal training is misplaced.  She shared this is more the case for adults, while for kids PT is about re-establishing Nuero pathways.

Also, one of #CPChatNow’s founders, John Quinn, stopped by and shared the latest always interesting developments in his life.  Seriously, check out his book, Someone Like Me, it is an outstanding description of his life with CP.

John Quinn shared a copy of his book Someone Like Me with an Academy Award winning actress

In some happy news, our #CPChatNow Co-Host now known as Jorge Oteiza, is back from Spain and enjoying some family time, overalls, and a new tattoo.

Picture of Jorge Orteiza with his grandma in overalls

Also, Jorge shared some positives and experiences from his trip to Spain:

Jorge's positives from Spain: knowing the metric system, friends, and an intact phone after dropping it in the train tracks. Rachel advised not doing that in Chicago

Next, this brings us to the announcement of our focus chat on aging with CP. Please join us tomorrow, Wednesday, May 31st at 8 EST.

Zach announcing our focus chat on aging

Finally, I would like to go back to the beginning of our chat for Rachel’s discussion about washing dishes being therapy to our Extend-The-Conversation-Question: What non-traditional forms of therapy have you used?

A picture of waves crashing on the shore with white #CPChatNow logo and the extend-the-question conversation: What non-traditional forms of therapy have you used?

Please join us tomorrow at 8 EST for our focus chat on CP and aging.

Tweet you soon!

-Devin