#CPChatNow Recap- 07-27-2016

Posted on August 5, 2016 by blakehenry1

Food stole the discussion early during #CPChatNow Wednesday, July 27th, 2016’s. Co-host Blake Henry here with a delayed recap. The conversation topics were wide during the chat. The conversation went from food to eating habits, tiredness, and then concluded with bucket list. It was surprising to see how varied bucket list can be.

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My co-host Zachary Fenell curious if not cooking all the time for yourself is a benefit when with a significant other.

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Deciding on the right type of diet can be a tough decision!

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A regular Hannah Pike shared her diet style and the difference between specific diets.

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Dialogue from July 20^th #CPChatNow brought back some unfinished business about energy and it’s vice tiredness.

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Again, Zachary Fenell with questions extended from July 20^th #CPChatNow.

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Many chat-goers chimed in and gave their opinions on what makes them tired, the worst thing anyone could be.

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Devin extends to us the obvious way to lessen fatigue.

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Zachary can attest to the benefits he sees in physical activity in reducing tiredness.

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The biggest conversation of the night – Bucket List!

Jen asked an end of summer question. Many participants bucket list were interesting and some a little obscure.

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Many expressed wanting to see popular attractions.

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However, some wanted to incorporate bucket list items into something they already enjoy.

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Lastly, don’t forget about our monthly Google Hangout on August 11^th at 8PM ET. Please connect with Zachary or myself for instructions on how to become part of the community.

Since I mentioned the extend-the-conversation question, let me remind you to answer this week’s question.

“What are some specific sites you would like to see while accomplishing your bucket list?”

[Bucket List} #CPChatNow Extended Conversation Question July 27th (1)

Respond by commenting below.

Thank you for viewing our website and this recap. Connect with over on Facebook.

– Blake

#CPChatNow Recap 05-18-2016

Posted on May 22, 2016 by blakehenry1

Every week the live cerebral palsy Twitter chat #CPChatNow comes together to discuss a wide variety of topics. Hi, your co-host Blake Henry here to give you the low-down on this week’s chat. Allow me to do so by recapping the May 18th Twitter chat.

This week we got to know the newest participant of #CPChatNow. This is what Shira Sadiky had to say about our community.

#CPChatNow Home

“What makes #CPChatNow home for you?”

The community is often known to emit rays of homeliness, education, and most importantly, that of community.

Belonging

We have grown into a great community over the past two years r the leadership of my co-host Zachary Fenell and myself expanding and connecting several people with cerebral palsy to each other.

The summer happies have set in for many, but participants are still finishing up their last few weeks of school. The end of the year always seems to drag on longer than it ever should be allowed too.

Highschool & College

The end of school talk sparked conversation about one of the many things you have to do at least once or multiple times during summer, whether you like it or not! ROADTRIP!! “Are we there yet” – Brian Levant. I can hear many of you saying “Kiss my 330 cubic inches of V8 power, sucker!” – Nick Persons, right now.

One of our regulars, Hannah Pike said that she missed me and that I needed to come see her. I told her it would be great because I could ride on “Mr. Be Bo Jr,” a name for her mobility device because of my laughable memory loss. But she quickly corrected me, and told me its “Hank the Tank.” I’m excited to see you soon in your country guitar wielding BIG city.

Nashville

The weekly extend-the-conversation question supplies the opportunity to reconnect and tell what first made #CPChatNow your home on Wednesday nights? So make sure you answer the week’s extend-the-conversation question. “What makes #CPChatNow home for you?”

Don’t forget to answer in the “Comments” section.

As always thank you for reading the recap and for your interest in #CPChatNow.

-Blake

#CPChatNow Recap- 04-20-2016

Posted on April 28, 2016 by zacharyfenell

Every week the live cerebral palsy Twitter chat #CPChatNow demonstrates our community’s multi-faceted nature. Hi, co-host Zachary Fenell here to dissect what that means. Allow me to do so by recapping the April 20th Twitter chat.

When I tell someone about #CPChatNow, I use the phrase “online support group for those with cerebral palsy.” The way we provide support proves multi-faceted. We offer an open forum to ask questions and better understand CP.

$Has anyone dealt with stress fractures?$ $CPChatNow's stress fractures discussion transitions to talk about falls.$ Plus we work as a problem solving think tank.

Then the weekly Twitter chat also supplies a chance to bond over cerebral palsy related commonalities!

Personally I want as many people possible to enjoy #CPChatNow’s supports. Hence I started the extend-the-conversation question. You do not need Twitter or any social media to participate! Simply read the recap and leave a comment to answer the week’s question. This time around answer the following.

“What modifications, if any, did you receive for PE?”

Moving on, our multi-faceted supports leaves community members holding #CPChatNow in high regards. Even to the point where internationally people partake at crazy hours!

Come experience our incredible community for yourself! We give you the opportunity every Wednesday at 8pm ET. Join us on Facebook too. Like the CPChatNow Facebook fan page! There we post cerebral palsy related articles daily.

Finally, remember to answer the week’s extend-the-conversation question.

“What modifications, if any, did you receive for PE?”

Respond by leaving a comment below!

Thanks for checking out the recap.

-Zachary

P.S. To read the aforementioned sample from my memoir, just visit Off Balanced‘s Amazon sales page.

#CPChatNow Recap- 04-06-2016

Posted on April 13, 2016 by zacharyfenell

Cerebral palsy related wisdom, uniting as one community, and more surfaced during the April 6th, 2016 #CPChatNow Twitter chat. Before I get into summarizing mode though, I want to thank you for your patience. Lately I am failing to post these weekly recaps in a timely manner. This segues to other failures as well.

Last month my co-host Blake Henry and I surprised our community by launching said website here. We possessed and still possess many hopes for the site. I looked forward to allowing others to post the weekly recaps. Shortly following the website launch an idea for a special “What’s Your Story?” blog post series emerged.

Yet I’m still the lone ceep writing the recaps. There remains no progress on the “What’s Your Story?” series. Know all this weighs on me. While I cannot offer a time table for when these changes will start, I can say they will eventually start. So again, thank you for your patience.

Now with that said, let us re-focus and revisit last week’s Twitter chat. Seeing #WednesdayWisdom trending I decided to ask about cerebral palsy related wisdom.

Another question asked dealt with the widely varying differences found in the overall CP community.

What a question! A question I liked so much, I wanted to give you the opportunity to reply! Go ahead and answer as the extend-the-conversation question “Do those who are high functioning have obligation to reach out to those who are severely affected by CP? Are we one community?”

Leave your answers in the “Comments” section. If you want to checkout Lindsay’s blog post on the topic prior to answering, click here.

The variation in severity carries over into the entire disability community. A fact which emerged when discussing the ADA line at events.

Well, judging by the time I should bring the April 6th, 2016 #CPChatNow recap to a close. I mean this week’s chat begins very shortly. Whether or not you can join the live chats on Twitter, you should contribute to the conversation. So go ahead and answer the extend-the-conversation question.

“Do those who are high functioning have obligation to reach out to those who are severely affected by CP? Are we one community?”

Again answer by leaving a comment below. Thank you too for checking out the weekly recap!

Until next time!

-Zachary

#CPChatNow Recap- 03-02-2016

Posted on March 3, 2016 by zacharyfenell

Let a new era in the cerebral palsy community CPChatNow officially begin!

I am #CPChatNow co-founder and current co-host Zachary Fenell. I introduce myself because the future will see posts from others in our community. While we work towards those developments, I will resume providing you recaps highlighting our live weekly Twitter chats.

Previously said recaps appeared on my own blog at zacharyfenell.com. In an effort to create more community ownership though, this website came about. Last night during our live chat I officially revealed cpchatnow.com.

As the latter screen grab speaks to there exists many possibilities to grow CPChatNow through the website. Over the next few weeks we will set out actionable steps to turn the possibilities into actualities.

Meanwhile allow us to focus our attention on Wednesday, March 9th (THIS Wednesday). Announced by my co-host Blake Henry, we will welcome a very special guest in the upcoming week.

Back in 2014 Hunter carried his brother Braden on his back for 40 miles in a trek dubbed “Cerebral Palsy Swagger.” The story went viral, garnering much mainstream attention for cerebral palsy awareness. Seriously mainstream! Hunter threw out the first pitch at a Detroit Tigers game and won Sports Illustrated’s 2014 High School Athlete of the Year Award. Wrestling fans in our community may even recall seeing Hunter and Braden on Monday Night Raw.

Perhaps most impressive about Hunter and Braden stands the fact they continue their cerebral palsy advocacy efforts. This included raising money for an accessible playground at Braden’s school and topping their 2014 40-mile walk with 57 miles in 2015! You can learn more about these latest endeavors via CNN among other news stations.

Between the big website and focus chat announcements yesterday you might think we exhausted our excitement levels. Yet we managed to reach an excitement hat trick! Over the last month Erin (@emdeerx) and I both spent time creating designs for future #CPChatNow shirts. We revealed our respective designs last night.

Erin’s second design holds a variation.

Option #1: This design remains specific to our Twitter chats.

Erin's second variation to her CPChatNow train shirt design.

Option #2: This option mentions our Twitter chats but also acknowledges our presence on Facebook.

Voice your opinion on the variation you prefer with this week’s extend-the-conversation question. “What train shirt design do you prefer?” Answer in the “Comments” section below!

Finally like a train building speed, next week’s chat promises to build on our momentum. Make sure to join us when Hunter Gandee from Cerebral Palsy Swagger leads our focus chat on CP and the future.

#CPChatNow Recap- 01-13-2016

Posted on January 14, 2016 by zacharyfenell

Welcome to #CPChatNow’s very own website!

Zachary here to bring you the recap for the January 13th, 2016 #CPChatNow chat. There remains a reason Wednesday after Wednesday our community takes to Twitter and participates in the live chat #CPChatNow. There just exists a comfort in relating to others.Take cold weather for example.

Battling the winter cold stands a challenge for many with cerebral palsy. So let us use this week’s extend-the-conversation question to share strategies. Answer “How do you fight the cold?” Respond in the “Comments” section.

Moving on another comfort our community provides involves bonding over accessibility frustrations.

The aforementioned comforting and bonding proves very valuable. Said sentiments establish a community where one feels safe to open up. Thus the reason I could without hesitation ask about embarrassing falls.

Anyone interested in learning more about the fall I mention should checkout my CP memoir Off Balanced. Before you go though, remember to answer the extend-the-conversation question. “How do you fight the cold?”

Leave your answer in the “Comments” section below!

Thanks for reading,

Zachary

#CPChatNow

Online community for those with cerebral palsy!

Tag Archives: cerebral palsy